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Support US


By making a donation, you will give us the means to advocate for Bardet-Biedl syndrome patients and promote research. Please note that in many European countries, donations are tax deductible for individuals and private companies. 

Your generosity will allow us to continue our vital work in making a difference in the lives of people living with Bardet-Biedl Syndrome across the globe.  Make a donation, sporadically or periodically, in the amount of your choice  :

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You can become a volunteer and/or representative of families in your country.  

It is also possible to help us with specific tasks, such as translating the website into your native language.

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You can collaborate with us as a volunteer, supporting us in spreading our message, carrying out our activities or launching a fundraising initiative in your personal networks. Please contact us for ideas and suggestions.

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